These are stories submitted by members of the Gabriel's Life community. If you would like to submit
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A Life Long Process
Author:
tara smoot
I'm a survivor of congenital hydrocephalus. My head grew at a quarter of an inch every three days for the first two months of my life. I had two shunts put in when I was three months old. They were removed when I was five-and-a-half months old. Since the age of two months I've lived through 276...
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A story of Aquired hydrocephalus
Author:
Monica Ball
I am 32 diagnosed in 2003. At 8 years old I had a brain tumor and did not receive the right medicine to keep the swelling down from the surgery. For 8 days my nsg was gone researching my tumor it was the first aystrocytomia at the hospital. The 9th day my nsg came in and was very upset to see I...
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Diagnosed Late
Author:
Chad Booher
Although I had severe headaches since childhood, I was not diagnosed with hydrocephalus until I was in my twenties. My mother has always had migraines so doctors assumed they genetically passed from her to me. I can specifically remember other children getting headaches and they have no idea...
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Jake's Story
Author:
Dave & Sally Gardner
You might be asking yourself, "What do I get a guy who has everything for his 50th birthday"?
It was 4:00 p.m. on a Friday afternoon as Dave & Sally sat with Jake, who wasn't even a month old, at the Tahoe Forest Hospital awaiting the results of his ultrasound. Jake’s pediatrician came...
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My Journey with Hydrocephalus
Author:
Ashley Reber
I was born on September 6,1986, a healthy baby, but then developed meningitis, and Hydrocephalus at 2 weeks old. I then had a shunt placed, and was healthy for 11 years. I had some learning disabilities, but I went regular classes, and did whatever I wanted to do. I loved to swim,dance, and...
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My Life With Hydrocephalus...
Author:
Lon Diffenderfer
Before I begin, I want to say that my situation is not at all "average" or "typical." In fact, of the many people with hydrocephalus that I have met over the past decade, I am the only one that I know who has survived since birth (until I was 36 years old) without receiving a shunt. So, if you...
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Such a great reward
Author:
TJ Crawford
I have had the pleasure of working on the Gabriel's Life and Hydrocephalus Associations new websites.
I, like many others, had not been exposed to Hydrocephalus nor even heard the word before my involvement here. These sites (gabrielslife.org and the soon to be launched hydroassoc.org)...
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Tom's story
Author:
Sue Tom's mother
Tom was born 6/22/86 he just turned 21. He has an older brother Mick 23, and 2 younger siblings, Tyler 13 and Heather7. Mom and Dad have been married 23 yrs. Tom was born c-section and shunted at 3 weeks, home at 4wks. He has had one blockage at 3 and a staff infection at 6, new placement of...
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