Natalie's Story - A Journey Through the Darkness
Author:
Autumn Martinage
We were surprised to learn we were pregnant. We had barely been married a month and I was supposed to be on birth control. A baby was not in the plans for at least another couple of years. Well, our daughter had different plans...so despite the birth control that we thought was...
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Simon's Story
Author:
Rachel
Simon was born two and a half weeks early and ended up being in the PICU because I had an infection. After a week he was released with a clean bill of health. At his four month well baby visit Simon's head circumference had jumped from 30% to 90% so the pediatrician scheduled a five month visit...
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Skylyn Faith Garcia
Author:
Leddy Garcia
Hello everyone it was such a blessing to find thid website. My daughter Skylyn was born on 2/8/2009 with Myelomeningocele L3/L4,bilateral knee flexion contractures, and bilateral clubfeet. Skylyn went straight to surgery to close her open neural tube defect and have her shunt put in. We found out...
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My Story
Author:
Jennifer Lucas
My name is Jennfer Lucas and I have congenital hydrocephalus. I was born with it and this is my story.
On January 31st 1984. I was born weighing 2lbs 2ozs. My biological mother didn't want me so she called her sister to come to the hospital to get me. When my adopted mom and another
sister...
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My story
Author:
Lacy Merrill- mother
Carly was diagnosed with ventriculomegaly at 20 weeks gestation. She was believed to have down syndrome and possibly other chromosome abnormalities. I was encouraged to terminate my pregnancy as it was believed that she would not have a normal and healthy life. I had an amniocentesis at 23 weeks...
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My history with my hydrocephalic little friends
Author:
Hermes Prado Jr M.D.
Hi, friends!
I am a doctor who makes digital art focusing on several medical themes, specially hydrocephalus and neural tube defects. Visit my website to see some very interesting animations
http://www.artesmedicas.com/hidrocefalia.htm
Hermes Prado Jr M.D.
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Author:
Dorie Wolford
My twin sister and I were born 10 weeks early in October of 1992. We spent about that much time in the NICU before we could finally go home. At about one day old, I had a hemorrhage in my brain due to high blood pressure. My underdeveloped lungs made it harder to breathe, which raised my blood...
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Our experience
Author:
Peri Sanders
My son (our first child) had bacterial meningitis/sepsis at 5 weeks (late onset from my being Group B strep positive). When we arrived at the children's hospital they said we'd be lucky if he made it through the night.
Thankfully w/ lots of broad spectrum antibiotics and lots and lots of...
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